Today is a day to celebrate.
Bea was diagnosed with DIPG 9 months ago, on December 17, and she's still here and she's still going strong.
The fact is that most children with DIPG survive about 9 months post diagnosis. Tomorrow will be the first day that she is truly beating the statistical odds.
As of today Bea can still walk (albeit not perfectly), talk, read, write, tell jokes, paint, play games, eat whatever she wants, bowl (her latest obsession) and go to school. She can play with Lewis all day long. She can sit with and pet her little pal Eva, our runt of a 5 pound black cat. She can hang with friends.
And, even more significantly, Bea will be turning 7 years old on September 26. She's going to have a great day and then we'll figure out the next milestone. Life works out at about one week at a time in our household and, well, that's a pretty good way to be.