Bea and I are off to Pittsburgh, hopeful that the MRI will look good and that Bea will be able to continue with the cancer vaccine trial. I'm trying to be optimistic but it's hard. We've had so many bumps in the road this summer. And, now, Bea has a terrible head cold that's making her tired.
She came home from school with this cold on Friday. The the steroids have a side effect we weren't told about. Steroids are anti-inflamatory and reduce swelling. So, for that they're great. But, we did not know that they also suppress one's immune system and reduce body temperature. We sent Bea off to school last week not knowing that she would be more susceptible to germs. Had I known this I would have has her tutored for the first 2 weeks of school, until after this trip today. Hindsight is 20/20, of course.
I get really frustrated some days that doctors don't tell you what commonly happens when one is on a medication or about the side effects of a procedure. And then they blame the parents for not asking the right questions. It's very beaurocratic. Dot your i's and cross your t's but make sure you don't say more than you have to. C.Y.A.....
Apparently, getting colds is common with steroids. I found this out when I took Bea to her pediatrician yesterday to get her cold checked out. He told me without thinking twice about it. Bea's oncologist didn't say a word about what it would do outside of fixing the hydrosephalus.
So, it's not Bea wouldn't have taken the steroids. It was that or surgery. So, duh that's a no brainer. But, seriously, a little help, please?