Just a short note... Bea and I will be at Pittsburg Children's Hospital until Sunday. She still has hydrocephalus, although not as badly as before. But it will continue to get worse again. So, we've opted for her to have the surgery here. She will get a shunt as well as a medical port. This will not interfere with the trial.
I spoke at length with the trial doctor and was told that Bea's MRI yesterday looked good and that it's clear to her that the vaccine is working. Bea will receive another shot tomorrow. So, she will be continuing with the trial!
This is a much better outcome than I expected.